Bridging the gap: returning genetic results to indigenous communities in Latin America

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dc.catalogadorjca
dc.contributor.authorArango-Isaza, Epifanía
dc.contributor.authorAninao, María José
dc.contributor.authorCampbell, Roberto
dc.contributor.authorMartínez, Felipe I.
dc.contributor.authorShimizu, Kentaro K.
dc.contributor.authorBarbieri, Chiara
dc.date.accessioned2023-12-19T18:18:13Z
dc.date.available2023-12-19T18:18:13Z
dc.date.issued2023
dc.description.abstractIn response to inequality in access to genomics research, efforts are underway to include underrepresented minorities, but explicit (and enforcing) guidelines are mostly targeted toward the Global North. In this work, we elaborate on the need to return scientific results to indigenous communities, reporting the actions we have taken in a recent genomic study with Mapuche communities in Chile. Our approach acknowledged the social dynamics perpetuating colonial hierarchies. We framed genetic results to empower indigenous knowledge and communities’ history and identities. A fundamental step in our strategy has been sharing the results with the communities before publishing the scientific paper, which allowed us to incorporate community perspectives. We faced the challenge of translating genetic concepts like admixture, emphasizing the distinction between identity and biology. To reach a broad and diverse audience, we disseminated the study results to single community members, cultural representatives, and high schools, highlighting the importance of the history of the region before the European contact. To facilitate results dissemination, we prepared didactic material and a report in Spanish written in non-specialized language, targeting a wider Latin American readership. This work illustrates the benefits of discussing scientific findings with indigenous communities, demonstrating that a collaborative and culturally sensitive approach fosters knowledge sharing and community empowerment and challenges power dynamics in genetic research. Bridging the gap between academia and indigenous communities promotes equity and inclusion in scientific endeavors.
dc.fechaingreso.objetodigital2023-12-15
dc.fuente.origenORCID
dc.identifier.doi10.3389/fgene.2023.1304974
dc.identifier.eissn1664-8021
dc.identifier.issn1664-8021
dc.identifier.urihttps://dx.doi.org/10.3389/fgene.2023.1304974
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/75535
dc.identifier.wosidWOS:001123925400001
dc.information.autorucEscuela de Antropología; Martinez Latrach, Felipe; 0000-0003-0650-4448; 200652
dc.information.autorucEscuela de Antropología;Campbell, Roberto;S/I;1012715
dc.language.isoen
dc.nota.accesoContenido completo
dc.revistaFrontiers in Genetics
dc.rightsacceso abierto
dc.subjectLatin America
dc.subjectIndigenous communities
dc.subjectGenomics
dc.subjectGlobal South
dc.subjectEthics
dc.subjectChile
dc.subject.ddc320
dc.subject.deweyCiencias políticases_ES
dc.subject.ods01 No poverty
dc.subject.odspa01 Fin de la pobreza
dc.titleBridging the gap: returning genetic results to indigenous communities in Latin America
dc.typeartículo
dc.volumen14
sipa.codpersvinculados200652
sipa.codpersvinculados1012715
sipa.trazabilidadORCID;2023-12-11
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