Decisional Control Preferences, Disclosure of Information Preferences, and Satisfaction Among Hispanic Patients With Advanced Cancer

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dc.contributor.authorNoguera, Antonio
dc.contributor.authorYennurajalingam, Sriram
dc.contributor.authorTorres Vigil, Isabel
dc.contributor.authorParsons, Henrique Afonseca
dc.contributor.authorRosina Duarte, Eva
dc.contributor.authorPalma, Alejandra
dc.contributor.authorBunge, Sofia
dc.contributor.authorPalmer, J. Lynn
dc.contributor.authorBruera, Eduardo
dc.date.accessioned2024-01-10T12:04:49Z
dc.date.available2024-01-10T12:04:49Z
dc.date.issued2014
dc.description.abstractContext. Studies to determine the decisional control preferences (DCPs) in Hispanic patients receiving palliative care are limited.
dc.description.abstractObjectives. The aims of this study were to describe DCPs, disclosure of information, and satisfaction with decision making among Hispanics and to determine the degree of concordance between patients' DCPs and their selfreported decisions.
dc.description.abstractMethods. We surveyed 387 cancer patients referred to outpatient palliative care clinics in Argentina, Chile, Guatemala, and the U. S. DCPs were measured with the Control Preference Scale, disclosure preferences with the Disclosure of Information Preferences questionnaire, and satisfaction with care with the Satisfaction with Decision Scale.
dc.description.abstractResults. In this study, 182 patients (47.6%) preferred shared decisional control, 119 (31.2%) preferred active decisional control, and 81 (21.2%) preferred a passive approach. Concerning their diagnosis and prognosis, 345 (92%) patients wanted to know their diagnosis, and 355 (94%) wanted to know their prognosis. Three hundred thirty-seven (87%) patients were satisfied with the decisionmaking process. DCPs were concordant with the self-reported decision-making process in 264 (69%) patients (weighted kappa 0.55). Patients' greater satisfaction with the decision- making process was correlated with older age ( P <= 0.001) and with a preference for enhanced diagnostic disclosure ( P <= 0.024). Satisfaction did not correlate with concordance in the decision making process.
dc.description.abstractConclusion. The vast majority preferred a shared or active decision- making process and wanted information about their diagnosis and prognosis. Older patients and those who wanted to know their diagnosis seemed to be more satisfied with the way treatment decisions were made. (C) 2014 U. S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
dc.description.funderAmerican Cancer Society
dc.description.funderM. D. Anderson Cancer Center support grant
dc.description.funderNational Institutes of Health
dc.description.funderNational Cancer Institute
dc.description.funderNATIONAL CANCER INSTITUTE
dc.description.funderNATIONAL INSTITUTE OF NURSING RESEARCH
dc.fechaingreso.objetodigital17-04-2024
dc.format.extent10 páginas
dc.fuente.origenWOS
dc.identifier.doi10.1016/j.jpainsymman.2013.06.010
dc.identifier.eissn1873-6513
dc.identifier.issn0885-3924
dc.identifier.pubmedidMEDLINE:24035071
dc.identifier.urihttps://doi.org/10.1016/j.jpainsymman.2013.06.010
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/75887
dc.identifier.wosidWOS:000335449400009
dc.information.autorucMedicina;Palma A;S/I;1001489
dc.issue.numero5
dc.language.isoen
dc.nota.accesocontenido parcial
dc.pagina.final905
dc.pagina.inicio896
dc.publisherELSEVIER SCIENCE INC
dc.revistaJOURNAL OF PAIN AND SYMPTOM MANAGEMENT
dc.rightsacceso restringido
dc.subjectPalliative care
dc.subjectdecisional control preferences
dc.subjectdisclosure of information preferences
dc.subjectadvanced cancer
dc.subjectBREAST-CANCER
dc.subjectSTANDARDIZED TERMINOLOGY
dc.subjectPHYSICIAN PERCEPTIONS
dc.subjectLUNG-CANCER
dc.subjectCARE
dc.subjectWOMEN
dc.subjectPARTICIPATION
dc.subjectILLNESS
dc.subjectDEFINITIONS
dc.subjectSCALE
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleDecisional Control Preferences, Disclosure of Information Preferences, and Satisfaction Among Hispanic Patients With Advanced Cancer
dc.typeartículo
dc.volumen47
sipa.codpersvinculados1001489
sipa.indexWOS
sipa.indexScopus
sipa.trazabilidadCarga SIPA;09-01-2024
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