A multicenter survey of Hispanic caregiver preferences for patient decision control in the United States and Latin America

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dc.contributor.authorYennurajalingam, Sriram
dc.contributor.authorNoguera, Antonio
dc.contributor.authorParsons, Henrique Afonseca
dc.contributor.authorTorres Vigil, Isabel
dc.contributor.authorRosina Duarte, Eva
dc.contributor.authorPalma, Alejandra
dc.contributor.authorBunge, Sofia
dc.contributor.authorPalmer, J. Lynn
dc.contributor.authorDelgado Guay, Marvin Omar
dc.contributor.authorBruera, Eduardo
dc.date.accessioned2024-01-10T12:04:10Z
dc.date.available2024-01-10T12:04:10Z
dc.date.issued2013
dc.description.abstractBackground:
dc.description.abstractUnderstanding family caregivers' decisional role preferences is important for communication, quality of care, and patient and family satisfaction. The family caregiver has an important role in a patient's decisional role preferences. There are limited studies on family caregivers' preferences of the patient's decision control at the end of life among Hispanics.
dc.description.abstractAims:
dc.description.abstractTo identify Hispanic caregivers' preferences of the decision control of patients with advanced cancer and to compare the preferences of caregivers in Hispanic Latin American and Hispanic American caregivers.
dc.description.abstractDesign:
dc.description.abstractWe surveyed patients and their family caregivers referred to outpatient palliative care clinics in the United States, Chile, Argentina, and Guatemala. Caregiver preferences of patient's decision control were evaluated using the Control Preference Scale. Caregivers' and patients' sociodemographic variables, patient performance status, and Hispanic American patient acculturation level were also collected.
dc.description.abstractParticipants:
dc.description.abstractA total of 387 caregivers were surveyed: 100 (26%) in Chile, 99 (26%) in Argentina, 97 (25%) in Guatemala, and 91 (24%) in the United States. The median age was 56 years, and 59% were female.
dc.description.abstractResults:
dc.description.abstractCaregiver preference of patient's decision control was passive, shared, and active for 10 (11%), 45 (52%), and 32 (37%) Hispanic American caregivers and 54 (19%), 178 (62%), and 55 (19%) Hispanic Latin American caregivers (p = 0.0023), respectively. Caregiver acculturation level did not affect the preferences of the Hispanic American sample (p = 0.60).
dc.description.abstractConclusions:
dc.description.abstractMost Hispanic family caregivers preferred the patient to make shared decisions. Hispanic Latin American caregivers more frequently preferred patients to assume a passive decisional role. Acculturation did not influence the preferences of Hispanic American caregivers.
dc.description.funderMD Anderson Cancer Center
dc.description.funderNational Cancer Institute
dc.description.funderAmerican Cancer Society
dc.description.funderNational Institutes of Health
dc.description.funderNATIONAL CANCER INSTITUTE
dc.description.funderNATIONAL INSTITUTE OF NURSING RESEARCH
dc.fechaingreso.objetodigital2024-05-20
dc.format.extent7 páginas
dc.fuente.origenWOS
dc.identifier.doi10.1177/0269216313486953
dc.identifier.eissn1477-030X
dc.identifier.issn0269-2163
dc.identifier.pubmedidMEDLINE:23670718
dc.identifier.urihttps://doi.org/10.1177/0269216313486953
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/75714
dc.identifier.wosidWOS:000320502600015
dc.information.autorucMedicina;Palma A;S/I;1001489
dc.issue.numero7
dc.language.isoen
dc.nota.accesocontenido parcial
dc.pagina.final698
dc.pagina.inicio692
dc.publisherSAGE PUBLICATIONS LTD
dc.revistaPALLIATIVE MEDICINE
dc.rightsacceso restringido
dc.subjectDecisional role preferences
dc.subjectfamily caregivers
dc.subjectpalliative care
dc.subjectHispanics
dc.subjectLatinos
dc.subjectOF-LIFE
dc.subjectEND
dc.subjectACCULTURATION
dc.subjectCANCER
dc.subjectMEN
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleA multicenter survey of Hispanic caregiver preferences for patient decision control in the United States and Latin America
dc.typeartículo
dc.volumen27
sipa.codpersvinculados1001489
sipa.indexWOS
sipa.indexScopus
sipa.trazabilidadCarga SIPA;09-01-2024
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